LDN Victory Over Multiple Sclerosis (MS)

Those of us who live with MS have our own personal story, our journey that includes various ups and downs. These are sometimes arduous journeys that include much pain, difficulty and of course utter frustration. So, when one of us has good news, and a personal story that is triumphant, it behooves us to learn about him or her and take what we can from it in order to benefit in our own lives. Please feel free to respond with a comment after reading Cam's story, or any other entry on this blog. Feel like sharing your story? We want to hear from you.

I was first diagnosed with MS March 2007. I then started on Rebif treatment Sept 2007. My last Rebif was June 10th 2009. My first LDN dosage was 4.5mg on June 11th 2009. A 47-year-old male, I have had RRMS for 3 years now. I fired 2 neurologists and one general physician and finally found a doctor in an MS Society clinic who currently prescribes LDN to MS patients. She prescribed 4.5 mg for me and said that I, along with other MS patients should be on 4.5 mg and should be on it.


I stopped the Rebif injections on my own volition. I did this because while LDN enhances the immune system, Rebif suppresses it. I did not want that internal battle going on within my body. I also understand that while taking LDN, the only other drug you can safely take simultaneously is Copaxone.


Before I started taking LDN, I had numerous symptoms. I had cold numbness in my hands and feet, to the point that it was painful to wear socks and shoes and gloves or mittens. I also had the sensation of bands around both of my knees. I had a serious sinus infection at the time of starting LDN. I also had extreme fatigue and no energy and was full of aches and pains. My mental awareness (brain fog) and thinking skills were diminished by 50%. In general my health was maybe 50% of what I was prior to being diagnosed with MS. I was having trouble sleeping through the night and not feeling rested when I woke up. I just felt like crap and was losing hope looking forward.

Within 3 days of taking 4.5 mg of LDN I noticed improvements in my hands and feet and the bands around my knees were gone. My sinus infection was gone in 3 days while taking no other medication than LDN. My general health and mental awareness strongly improved. After 1 week on LDN I was a new man. I went from feeling like an 80-year-old man getting close to a wheelchair to a 30-year-old man full of energy and excitement. I became alive again and got out and was able to be "Normal". My wife says to everyone now, “I can't keep up with him. It's wonderful!”

It is 11 months now since I started taking LDN; my hands and feet are almost numb-free. I have not had a relapse in 11 months and have had NO side effects from using LDN. I feel like I am 30 years old again with endless energy and full mental capability. I know that I will be on LDN for the rest of my life as the benefits of LDN are too great to stop. LDN has changed my life forever. I hope that everyone else has the same results. LDN is a wonder drug for people with auto-immune disorders.


Another bonus being on LDN is I have not had a cold or the flu in 11 months. It is quite common for people on LDN not to get colds or the flu. I am sleeping wonderfully and waking up very rested and relaxed.

I will never take Rebif ever again as I know it was slowly killing me from the inside out. During the 2 years that I was on Rebif I had 7 relapses and one bout of Bells Palsy, an ugly sinus infections and extreme fatigue. Since being on LDN for 11 months I have had no relapses no sinus infections no colds and no side effects from LDN. The bottom line is I feel like I did 20 years ago. I can say that I feel great. Now, all I hope to do is tell as many people I can about LDN. I want each and every one of them to feel as great as I feel.

 

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Comments

  • 5/24/2010 5:18 AM Dawn wrote:
    My neuro and GP both refused LDN for me. I will be visiting a new GP in July that believes in LDN. It is a two hour drive but well worth it. Stories like yours are what gives me the mental strength to hold on to this dream of a better life. Thank you ~ Dawn
    Reply to this
  • 8/7/2010 12:56 PM Joy wrote:
    Thanks for good info. I am currently exploring LDN in hopes of getting Rx and starting soon (Aug 2010). Aside from your positive general report on the subject it is helpful to have those details such as you provided. THANKS.
    Reply to this
  • 8/20/2010 10:13 AM Forrest wrote:
    Where is the MS clinic? I can't find a dr. locally to prescribe LDN. I have wanted to try it for a while. I have had several doctors say they won't prescribe it. We have a very similar set of symptoms. I am a little older.
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  • 8/26/2010 8:58 AM Dawn wrote:
    I think the best thing for you to do is contact Crystal Nason. She has a list of doctors that presribe LDN. Here is her site. www.crystalsmstmldn.org/ I hope this helps both of you. Life with LDN is better than life with shots. At least that has been my experience. Good luck.
    Reply to this
  • 9/2/2010 1:43 AM San Ramon Dentist wrote:
    I also wish him good luck to defend his gold medal. I definitely enjoyed every little bit of it I have you bookmarked to check out new stuff you post.
    Reply to this
  • 3/11/2011 1:45 PM Diane wrote:
    I have been taking LDN since 2008 ,i had numbness in my left foot and not one docotor around here in RI would prescribe it for me,i contacted Dr John Sullivan out in pennsylania and made a conference call and he started me right on it.......i call in every 3 months to give an update and he refills my LDN.my numbness had gone away but last year i had gotten some numbness in my right foot.which i am sure will slowly resolve itslef.but i will say,,,,,,,for 3 years i did not get any new lesions or anything,i would totally recommend LDN to anyone,i also started Copaxone in July 2010,.....Good Luck to all
    Reply to this
    1. 7/14/2011 2:56 PM John wrote:
      Just wondering what it was like the first day on LDN? I took my first 4.5mg one last night I woke up about 4 hours after and had a wierd sensation going all over my body starting at my face and working it's way down. I also had a wierd smell and the rest of the day was pretty tired. Have you heard of anything like this. THANKS
      Reply to this
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